Tuesday, January 25, 2011

Cry-Baby



Some mornings are good.
Most mornings are good.
Kymee wakes up cheerful and offers huge smiles, warm hugs, and cooing "I love yous" to
Mommy, Daddy, Grandma and Grandpa. (Brother and Sister are still in bed - so always miss these precious moments.)


Some mornings are bad.
Some mornings,
and lets be honest,
some random afternoons, evenings, and nights
are very, very bad.
Thus was this morning.

Kymee woke up screaming - you heard me right - not crying - SCREAMING



She does this randomly. Not quite as often as she used to, but still more often than I'd like. She can be playing, perfectly happy with tummy time - and then be screaming. Or like this morning
she just woke up that way.

Why you may ask?
1) The doctor calls it "Colic" - a label I have learned means nothing except "I have no idea why she cries and doesn't stop - and your insurance doesn't pay me enough to find out."
2) The therapist says, "She hasn't learned self-soothing skills, she must be taught" - but
they have yet to teach me how to teach her how to stop the screaming once it starts.
3) The cardiologist says, "It is most likely still the drugs in her system she had en-vitro" - this one makes the most sense to me
4) Mommy says, "I don't care why - just make it stop"

Forget "Self-soothing" I try "Mommy-soothing"

I sing. I cuddle. I rock. I pace.

She glares at me out of the corner of her eye, as if to say, "You're my Mommy you're supposed to make it better."


I offer her "Wubby"

No Luck.


I offer her "Bunny"
No luck.


Side Note:
I have never believed in inadament attachment objects - I believe babies should be attached to real live people who love them. But all my reading, and talking to other moms with medical need babies - attachment items can help get them through moments when Mommy and Daddy aren't available - like when you are being wheeled into an operating room, or waking from anesthesia in the recovery room. So - we are trying hard to "make" Kymee attached to her "Wubby" or "Bunny" - her seemingly favorite comfort items.


Back to the story: She continues to scream.


Mommy offers a handful of comfort.


I pray for her as she grabs my fingers in desperation. I pray God will heal her and give her peace. I pray for me too, that God will give me wisdom and patience.


She finally wears herself out, falls into a fitful - hicuppy sleep.


Luck.
Or better yet
God's Grace
Peace
And
Answered Prayer

Some episodes are 20 to 30 minutes, some are an hour and a half.
This one:
One Hour
Ten Minutes.
An hour and ten minutes of God teaching me how to love like He does.

Tuesday, January 11, 2011

Happy Hearts Don't Float!





Background:
Birth: heart murmur.
2 Months: EKG ~ small hole in heart
5 Months: EKG & Echo-cardiogram ~ hole smaller, heart surrounded by liquid.
Floating Heart = Very Scared Mama

1/11/11 - Cardiologist Appointment

EKG
Tracts heartbeat
Not bad - until the tape was ripped off

Echo-Cardiogram
Takes pictures of heart
You try keeping a 6 month old perfectly still.


Results
Murmur remains. Small hole remains.
NO LIQUID AROUND HEART!!!!!
Doctor's explanation: It was probably from her operations, and it went away on it's own.
Mom's explanation: GOD ~ PRAYER OF SAINTS


Kymee has a happy heart!



Monday, January 3, 2011

Kymee's Cup

First day of in-home therapy
"Drinking from a cup."
A funny looking cup - A nose-less cup

Flexi-Cups
(The little pink one looks like Kymee's)

The purpose of the cup is to allow a child to sit completely upright and not tilt their head when they drink. This way gravity works and the liquid drips down the throat. If Kymee tilts her head back to drink, as we do without thought, whatever she is drinking will creep into her roof cavity and come out her nose. Goal - down the throat, not out the nose.

First Try
Pictures Speak loader than words!



(Tip:Rubbing a baby's throat lightly encourages her to swallow)

Second Attempt
"I want my Mommy!"




"I did it - now give me my bottle."


Moral of the Story: Never send a therapist to do a Mommy's job